Monday, January 2, 2012

Its a family affair...

After my sons first reaction I became a protective parent. I started watching everything. I got my son a cute little MedicAlert band. Taught him to say "No nuts", became active in research on food allergies, subscribed to Health Canada's food recalls (here) and made appointments with allergist to become as informed as I could be. Our first allergist appointment was pointless. The allergist simply tested for walnuts. (If your making a specialist appointment for answers - dont be the last appointment of the day) As if we didnt already know it was walnuts, but what about all the other nuts? If we listened to that allergist when he said "It is probably an isolated walnut allergy as it is more common in children of european decent", my son would have probably never been taken to see Dr. David Hummel. Dr. Hummel was amazing, he gave us the time of day, tested in depth for Tree Nuts and Peanuts, discussed with us what we should do, steps to take. He was amazed with all the steps I had already taken. Both my husband and I had already practiced with a "trainer epi-pen" which we ordered from this link, we
de-nutted our house, informed friends and family, became trained in the scientific names of the allergens to watch out for, and began watching for cross-contamination. I was obviously more aware of the steps, despite trying to get everyone on board. Everyone thought I was crazy or being extreme. Honestly, I felt like grabbing my kids and running from my unsupportive family. I screamed when my Mother-in-Law purchased buns from an open bin, you would think this would be safe, but buns come from a bakery, a bakery in a grocery store is not allergen free. The risk of cross-contamination is very high, think of carrot cake, carrot cake is often made with crushed walnuts... think of those buns being baked in the same area... No one could persuade me to think it is safe to have in a house with a child that has severe anaphalaxis to walnuts. That was before discoverning my sons allergy was not specific to walnuts. We discovered during allergy testing with Dr. Hummel on November 15th that he has a positive allergy to Cashews, Walnuts, Pine nuts, Pistachios, Pecan, Hazelnuts, Brazil Nuts, Almonds and a "tree nut mix". This is slightly more rare than just a single family nut allergy. Each tree nut comes from a "family". Generally said, if you are allergic to walnuts, you will also be allergic to pecans, same with pistachio to cashews, beechnuts to chestnuts...

Walnut: walnut, pecan Birch: hazelnut, filbert, hickory nut
Mango: pistachio, cashews Plum: almond
Legythis: brazil Macadamia
Beech: beechnut, chestnut

It was in between all my research and my appointment with Dr. Hummel that I discovered that this will be a life long allergy for my son. On Food Allergy Gourmet it states: a tree nut allergy is rarely outgrown. Most people remain allergic for their entire lives. It is also possible to develop a tree nut allergy later in life. From Food Allergies About they say: over 90% percent of children diagnosed with tree nut allergies will have them for life. This is why I consider living with tree nuts allergies to be like a disability. It is not something that will just go away, it has no cure.



Some interesting facts I have found. I know this is about food allergies in Canada but I have yet to find the same interesting facts and figures for Canada.



  • Allergy to peanuts and tree nuts in the general population is, respectively, 0.6 percent and 0.4 percent, with the rate in children under age 18 (0.8 percent and 0.2 percent) slightly different from adults (0.6 percent and 0.5 percent respectively). These two foods are the leading causes of fatal and near fatal food-allergic reactions.
  • In spite of attempts to avoid allergenic foods, accidental exposures are the major causes of allergic reactions to foods. Over a period of two years, approximately 50 percent of subjects in the United States with food allergy have an allergic reaction to accidental exposure.
  • In the United States, there are approximately 30,000 episodes of food-induced anaphylaxis, associated with 100 to 200 deaths; most deaths occur in adolescents and young adults.
  • Food allergy is the most frequent single cause of emergency room visits for anaphylaxis and accounts for 34 to 52 percent of these visits.
  • 1 comment:

    1. Hi,

      I can't imagine how difficult it is for you as a mother to have to worry about your son's life every time you go out.

      My son has twice tested positive on skin tests for peanut, tree nut, and shellfish allergies. His blood tests last year were completely negative. We had repeat blood tests done yesterday. Waiting on the results.

      His allergist doesn't think he is severely allergic at all. Sometimes kids with very sensitive skin like his test positive on the skin tests. If his blood test is negative again, we will do a food challenge when he is old enough.

      ReplyDelete